Rare Disease Day is an observance held on the last day of February to raise awareness for rare diseases and improve access to treatment and medical representation for individuals with rare diseases and their families. European Organisation for Rare Diseases established this day in 2008 to raise awareness for unknown or overlooked illnesses. According to (EURORDIS), treatment for many rare diseases is insufficient, as are the social networks to support individuals with rare diseases and their families furthermore, while there were already numerous days dedicated to sufferers of individual diseases (such as AIDS, cancer, etc.), there had previously not been a day for representing sufferers of rare diseases. In 2009 Rare Disease Day went global as National Organization for Rare Disorders (NORD) mobilized 200 rare disease patient advocacy organizations in the United States while organizations in China, Australia, Taiwan, and Latin America also lead efforts in their respective countries to coordinate activities and promote the day. In addition, leading rare disease patient advocacy organizations including the Global Genes Project have joined forces to promote Rare Disease Day.
The Rare Disease Day Slogan for 2020 is “Rare is Many. Rare is Strong. Rare is Proud”.
Rare Disease Day Quotes.
•Be proud to show your stripes, you can make an impact on Rare Disease Day.
•Wishing you strength and happiness. Enjoy this Rare Disease Day with your friends and people like you.
•The voice of awareness shall be heard on this day of Rare Disease Day.Agency.